Roy is back at home now. His doses of medication have been increased. He seems to be more awake, and is nice and alert today. He appeared to be reaching out to tap his toys on his bouncer which was rather impressive.
The community nurse did a weigh in again today, and Roy's gained a bit of weight, but is falling off the charts a bit. Not unusual for heart kids.
Before Roy was discharged from hospital, he had a very very very sleepy afternoon, and was not very responsive. All his observations were fine, but they've asked us to to go back into the hospital to have a ward review tomorrow. The medication they increased can dramatically drop blood pressure (which is the point of it), but it was within acceptable limits yesterday, so I guess they want to check that he is still tracking OK.
Mark and I were advised to have flu-vac's for Roy sake. Roy also qualified for special immunisation that stops him getting RSV - the common strain of bronchilitis. If he got it in the next few months it would hit him really hard. It costs $10,000 for the immunisations which is administered monthly over the next four months. There is a strict criteria for kids to qualify for it, but the cost benefit analysis is that the govt is better off funding it for some heart kids rather than them ending up in ICU.
